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Stay strong and draw strength from knowing you are loved. |
Very happy to hear that news, Ed. God bless ya'!
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A little brightness from above when dark clouds seemed to be rolling in.
God Bless you Ed keep that warrior fight burning. |
Hard to imagine anyone as tough as you Ed....just incredible.
I hope the trip goes smoothly, you deserve it for sure! |
On way to Church. Always say a separate prayer for you. Stay strong.
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I was getting used to having one biliary drain, but I am back in the hospital and now have to contend with two of them. Groan.
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Stay strong, Ed.
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I'm sure that's just a precaution the hospital is taking because your balls keep getting in the way.
You're doing good, man. |
I've been out of it for several days now with a lack of energy so I have not been on here. The bags are off my drains and the one in the center of my abdomen hurts me when I get in and out of bed or off the sofa. It leaks a lot, too, which concerns me but not the docs. I have new meds to take with the ones I already have, and am waiting for Walgreens to get it together and fill one that is marijuana based. Insurance is causing the delay, going on 5 days now. I am weak due to muscle and weight loss. My arms are spindly and my face and neck are very thin. Those who met me at Barley's a while back could see that was not the case. I was a bit chunky then. I hope the weed med will boost my appetite because I look scary being so thin.
I started on some immunotherapy last week and go in again Thursday and then the 20th. So, three treatments under my belt will hopefully shrink and kill some tumors. The way I am now, I'd have to cancel my trip and that is causing me stress. |
I'm pulling for you, Ed. I so very badly want to read posts of how amazing this trip was.
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Hang in there bud.
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Keep fighting Ed!! We're all pulling for you!
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Stay in it, Ed. You've come a long way and we're not done yet.
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Marinol can cost upwards to $2000 per month without insurance. Private insurance doesn't like to pay for it. And it is only synthetic THC. It would be hard to smoke that much a month and you would be better served with a broader cannabidiol profile than marinol can offer. Look into activated vegetable based glycerin tinctures and transdermal patches. Vaping is always a great way to deliver medicine as well. But I think that option may not be available or wise with your condition.
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Fight like all get out brother, we love ya (no homo), we praying for ya, and you're in our thoughts..
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