Quote:
|
Still cannot believe there are 3 of us here fighting this shit. It is good to have others around to discuss, though.
The 3 Cancerteers. Oh, wow. That was really cheesy. Sorry. LOL |
They should trot us onto the field at halftime, shouldn't they?
|
Despite taking anti-nausea meds this time, sadly this morning, 16 hours after I last ate anything, my streak of not throwing up since May of 2008 came to a sudden, lengthy end. 6 or 7 raaalfs later, I sat down with some more meds, took them, waited a bit, and ate breakfast. So far so good except for hiccups. I am tired, too.
|
Quote:
|
Quote:
Sending good vibes to you dude. |
Fight on men, fight and then fight some more...
|
My friend Angela dropped by to help me wash my hair in the sink and I almost hurled on her. 3 seconds after I hugged her, I had my trash can in hand and let loose. Dammit. I hate puking.
|
Man, this is hitting me hard. I just threw up a lot, for the third time today, and it really burned. I wonder if I should ring the doc?
|
Quote:
|
Quote:
|
Quote:
|
Quote:
|
Quote:
|
Ed, thanks for sharing. I've been following your journey. Your positive attitude is a real inspiration.
One of my coworkers had knee surgery in July. A couple of weeks ago, he got a growth on that knee. No big deal at first, then is started getting tender and sore. Turned out to be a very rare and aggressive form of cancer that loves to head for the lungs. We were all worried for him. Monday he got the good news that the cancer was confined to his knee. They are going to carve it up again, look for cancer free margins, radiate him and hopefully he will be good to go. Stay strong. Octoberfest keeps really well. Sock a couple of sixes away and it will be waiting for you when you are ready. |
Said it before and I'm gonna say it again... hair grows back, dookie and puke can be cleaned up, and aches eventually subside.
Easy for me to say, I know. But theres only ONE "Fast Eddie," and that guy can handle anything... because he has too many things left to do. Get it? Got it? Good. |
Quote:
|
Quote:
|
Quote:
|
Stay safe big man.
|
Good morning, Ed. Sorry to hear about the body fluid fiesta. I guess Sacc would call it the "golden era" of treatment.
In any event, I'm still praying for your health. |
Quote:
|
Quote:
|
I threw out a prayer for you this morning. Have a great day and fight on...
|
Quote:
|
Quote:
|
Quote:
|
Quote:
I did ask my doc about hemp oil with no THC and she said I would be at great risk of microbal infection. |
It is now 11 days since I started the new treatment. I still have my hair, and it usually falls out on day 10, I was told. I only had the pukes on day 1 after treatment, followed by 2 days of hiccups after eating or drinking anything. Once again, hiccups are not on the list of side effects. I used to get them back in my earlier treatments if I ate anything with nuts, but was okay after the fifth day. I was given anti-runs meds before the treatment started since some poor souls have gotten the runs almost immediately upon receiving the treatment. I got the opposite and didn't go for four days. The dreaded rash I was warned about, however, has hit me hard. It looks something like chicken pox and small whitehead zits all over my face, nose, scalp, an eyelid, neck, and chest.
I would love to go for a walk in the gorgeous autumn weather here, but I have to avoid exposure to sunlight now. I do get out at sunset when I can walk and not be in the sunlight directly, but I'd prefer a walk before breakfast to build up my appetite for a big hearty meal. |
Quote:
|
Hang in there Ed. We are all in your corner.
|
Quote:
|
Thanks, guys! I am focusing on something good coming up, that being my birthday dinner. I make it myself. I do that because no one else can make what I want. If I just wanted some burgers and brats, I'd let someone else take care of it. I am going to make a big Danish dinner and have a few friends over. Since I have my next treatment on Tuesday, I will prepare the red cabbage on Monday to be safe. How does one make red cabbage aside from chopping it up? I make a cranberry sauce out of boiled cranberries mixed with butter, vinegar, sugar, and salt and put the chopped cabbage in that and cook it until it turns a rich purple and then when it cools, it goes into jars.
Friday morning, I will start with the rest: Danish meatballs called frikadeller (ground pork, salt, pepper, onion, milk, flour, and an egg), mashed potatoes with Danish persillesavs, which is a white gravy with chopped parsley, mixed salad with some bell peppers from my garden, heat up some red cabbage, and for dessert, Apples Charlotte, a Danish apple-crumb cake. I sautee bread crumbs in sugar, butter, and cinnamon. It goes into the serving dish first, followed by apple sauce with bits of Braeburn apple added, then with a layer of whipped cream that I will actually whip myself, then crumbs, apple sauce, and whipped cream again, and finally topped off with shaved chocolate. It is supposed to have a splash or two of dry sherry, but since I have to avoid the alcohol, no one gets any! :D My birthday is not on Friday, but Monday the 12th. I won't have the dinner on Sunday because the Walking Dead season premiere is at 8, and I don't want to be away from the TV then. Saturday was not good for one of my guests, so Friday it is. |
Damn, that sounds awesome, Ed.
|
Quote:
|
Quote:
How frequent are your infusions? Do you have a port, or are they sticking you every time. Mine are every 2 weeks. I decided against a port. |
Quote:
With my veins blowing every time they put an I.V. in me, a port has been great, except for the whole nearly dying part with the first one. |
Quote:
|
Quote:
|
I am actually glad to be going in tomorrow for treatment. The rash from the new treatment has gotten much worse. I don't think I should post the selfie I took since I know many of you check this site over lunch break. It hurts, burns, and itches, despite the use of two different creams that I had to get by prescription. I am hoping that it is beyond the expected rash so that something can be adjusted or done about it. If this is what I have to look forward to for the duration of this new line of treatment, I may have to insist on an alternative treatment. It's worse on my face, by far, but it is all over my scalp, in my ears, on my neck, shoulders, and chest, too. I have to be very careful washing my hair and toweling off. Pretty much any contact with the skin on my face breaks the little blisters and they bleed then. I am running the washing machine with my pillow case in it as I type. For you environmentally conscious types, I am running other things besides one pillow case.
|
Get your ass in there and bleed all over their stuff. I'm sure they'll be happy to figure out the problem post-haste.:cuss:
|
Quote:
|
I guess I got some good news today. My hideous rash is a good thing, the doc said. She said people who get the worst rashes, and I am one, tend to live longer due to the effectiveness of the treatment in my bloodstream. I am going to start on prednisone today in addition to the other stuff I am on. I am not getting the treatment that gives me the rash today, but it will still be on me for a month or more. I will be getting the new chemo that made me puke the day after, though. I am prepared with strategically placed raaaalf buckets in the house.
|
Quote:
|
Quote:
You're so damn inspirational, Ed. There is no way I'd want to cook a huge meal after chemo. Keep fighting and kicking ass. Get that Viking a sharpening stone for that battle axe. |
Yes, that does sound like good news, Ed. Lost the blister battle, but winning the war!!! You are a strong man. Can you play QB?
|
Quote:
|
Quote:
|
It seems, so far, the pattern from last week is not repeating. At this time a week ago, I had my first session with throwing up, followed by two more sessions. I am hungry now and that is the only discomfort I feel in my gut. Still have hair, too, and the rash is drier and hurts less so I slept pretty well last night. I do have the ralf bucket handy as a precaution, though.
|
Good to hear, Ed.
|
Quote:
|
I'm actually about to get my 2nd rd of Avastin soon IV is in.
|
Still praying for both of you chuckle heads and that damned fatty-lovin' Sacc too.
|
Quote:
|
i check in most days to see how you two are doing, but i don't often post...
it's inspiring to see you guys face the struggles you're going through with such dignity and at the same time humor... hang in there, it's possible to beat cancer, my sister did at age 70... |
Quote:
Prayers still happening... |
Quote:
Between the toes? LOL That's for heroin. :) |
Thanks for the kind words, guys. :)
|
2 Attachment(s)
I was against this, but since the doc said it is good, I will let you all see. My rash is much drier and less irritating now since I am on prednisone. I have two pics, one from when the rash manifested initially and then 5 days after that. It is not pretty, but like the doc told me, when it is this severe it has shown patients live longer. And it better be LONGER and not like 3 months longer to go through this mess.
|
Quote:
Great to hear that this negative rehash of puberty is actually a long term positive.:thumb: |
I have been on prednisone for 3 days now and it started drying and shrinking the bumps almost immediately. It's nice to be able to sleep without being disturbed by rolling hot waves of itchiness across my cheeks. Now if I can just ditch the hiccups, I might be able to get to sleep.
|
That's rough Ed hope it clears up for ya.
|
Quote:
|
Wow, the steroids are really doing the trick, that's gotta be a major relief... glad to see that bro.
|
I almost look normal again, so the prednisone is working well. My birthday dinner party went very well, save for the dessert. Damned hand held egg beater is broken, so I had to whisk the whipping cream with precious little success. So, the dessert could have been better looking with thick whipped cream on top. Oh, well. Everything else was great and we all had a good time. I even cleaned up the kitchen, took out trash, and started the dishwasher before going to bed. I felt good last night and I am tired this morning, but hungry.
Oh, and I am not to have alcohol, but I had a shot glass of Samuel Smith's organic chocolate stout ANYHOW. :harumph: |
Quote:
|
Quote:
|
Quote:
|
Quote:
|
Heartburn woke me up way too early, but temporarily. I have been getting that fairly often with the new treatment. I will be going back to bed after this post. So, today is my 48th birthday and I will make a birthday wish for a Royals win, for members here to take some deep breaths and not snap at one another over the debacle at Arrowhead on Sunday, and for me to not end up diabetic since my friends brought me tiramisu, baklava, and a big gooey chocolate cake. I already finished off the bag of black jellybeans, because my will is only so strong. I said I just wanted birthday cards, but they didn't listen.
I have to go in to the cancer center today late, at 3:45 pm, for a blood test and visit with the doc, but no treatment today. That will be next week. I hope they don't have a cake waiting for me today. |
Quote:
|
Happy Birthday, brother!
|
Quote:
|
Happy birthday Lone. And many more...
|
Happy Burthday! Keep hanging!
|
PBJHappy Birthday Ed!PBJ
|
HBD, Ed!
|
HBD Ed. All the best.
I'm sure the doctors have it under control but prednisone is kind of hard on the liver. Since you are abusing it anyway, might be good to have them reassure you that it's OK. |
I told my doc today that I had a half shot glass of chocolate stout and she didn't fuss me, so I suppose it was ok!
|
Happy Birthday, duder. Hope you enjoyed it.
|
All times are GMT -6. The time now is 05:22 AM. |
Powered by vBulletin® Version 3.8.8
Copyright ©2000 - 2024, vBulletin Solutions, Inc.