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#46 | |
Starter
Join Date: Nov 2013
Location: Utah
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Posts: 418
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#47 | |
Veteran
Join Date: Jun 2005
Location: Olathe, KS
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Quote:
It is a pain, but it would be much worse if I had to stay in the hospital for 2 days every other week watching a big bag of stuff drip into me slowly. I can sleep in my own bed and not have nurses and doctors pestering me around the clock, so I just remind myself of that as I bear having a toxic chemical being pumped through me for 2 days. I have to be more careful so as not to catch the tubes in a car door or on a chair. |
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Posts: 3,774
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#48 |
Starter
Join Date: Nov 2013
Location: Utah
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Wow, I can totally see myself being willing to go through all that so I could spend time at home instead of in the hospital.
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Posts: 418
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#49 |
Starter
Join Date: Nov 2013
Location: Utah
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Sleeping in your own bed is so much better than anything they could possibly offer.
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Posts: 418
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#50 |
Veteran
Join Date: Jun 2005
Location: Olathe, KS
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Posts: 3,774
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#51 |
Beyond the Rapids
Join Date: May 2003
Location: Langley, VA
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It's like the pulp fiction overdose needle, huh?
![]() How many more rounds have you got? Due for any more imaging soon? |
Posts: 80,659
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#52 |
Veteran
Join Date: Jun 2005
Location: Olathe, KS
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It isn't that big of a needle, but in my mind's eye, it seems like it could poke out of my shoulder blade on the other side! All I have heard about how many rounds is "indefinite." I am sure they will run another CT scan on me, but no date has been set yet. I meet with the colon doc on the 20th, so for now it's the routine of nurses and needles, nurse guy who takes my vitals, and alternating with the liver doc and the nurse practitioner, then treatment.
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Posts: 3,774
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#53 |
Veteran
Join Date: Jun 2005
Location: Olathe, KS
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So far, so good. I didn't pass out and the needle stick was not bad at all. It didn't really hurt and was more like a feeling of some pressure. For some reason, the nurse had trouble getting blood from me. She said I was nervous, and I asked why she thought that. "Because you're talking a lot!" she replied. Hrrrmph. Well, let me keep yappin' then! Now I am waiting for Eli to come and call me back to get my vitals.
How about that? He came out and called for me as I typed this. |
Posts: 3,774
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#54 |
Veteran
Join Date: Jun 2005
Location: Olathe, KS
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I got some news from the doc that I liked. She told me the treatments are going great but she wants to take me off the oxa- crap, still can't say or spell it after all this time! Anyhow, she wants me off of it for a while after this treatment so I don't suffer permanent nerve damage. That drug is the one affecting my fingers and feet when they get cold, and currently I have a feeling like someone is pinching my fingertips on several fingers, and it has affected my tongue where I have lost some sense of taste but not much and the tip of my tongue feels rough as if I burnt it on some hot food days back. I also like that since the oxawhatever takes 2 hours for the bag to finish dripping into me, I will be getting out of this place in no time the next several treatments! Woo hoo!
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Posts: 3,774
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#55 | |
You Sweetie!
Join Date: Sep 2005
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Posts: 71,691
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#56 | |
Beyond the Rapids
Join Date: May 2003
Location: Langley, VA
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Posts: 80,659
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#57 | |
Supporter
Join Date: Apr 2007
Location: Scott City KS
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Posts: 57,448
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#58 |
Veteran
Join Date: Jun 2005
Location: Olathe, KS
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Later in the day, I got some news I didn't care for so much. My CEA went up a little bit, to 6.1 from 5.3 and it was 6.3 the time before last when it was checked. I want that number to hit ZERO.ZERO, blast it! The nurse said it was not a big deal and I think it may be why I passed some blood again at times the past week. My cold sensitivity is pretty bad this time, too. As soon as my fingers get a little cold, BAM, there it goes. I couldn't type when I got home because it felt like I was pressing my fingers on one of those little ball-shaped cacti with the fine needles. Both hands even felt asleep when my fingers got cold and that is new, as before it has just been in the fingertips. So, the doc was right to get me off the oxaliplatin before permanent nerve damage occurs. It would make me truly disabled if my hands and fingers felt like that all the time.
On the bright side, I had my favorite nurse, Amanda, bringing me chemo bags today. I like her! I almost forgot... I asked my doc about the CEA numbers and if I was nearly dead in September when it was 88.5 and she said no, she has seen numbers in the thousands before. Holy crap. Here I was thinking with 88.5, I was neck deep in the grave back then! |
Posts: 3,774
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#59 |
Veteran
Join Date: Jun 2005
Location: Olathe, KS
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I am getting the pump removed in 2 hours, so I am happy to be free of it and get back into a more normal routine!
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Posts: 3,774
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#60 |
Itinerant degenerate.
Join Date: Dec 2013
Location: Caretaker, Overlook Hotel
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Posts: 8,185
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