Originally Posted by Dagnabit (Post 12388438)

That medication sounds horrendous.

Originally Posted by Lonewolf Ed (Post 12388444)

Oxiliplatin is very much a horrendous thing! I think it is also what makes my salivary glands in the back of my jaw go berserk when I take the first couple of bites of most any food. A few weeks back, I bit into a pear off of my pear tree that was not yet ripe and it felt like someone punched me in the jaw below my ear. Usually, the reaction is like I bit into the sourest of lemons, even though whatever I am eating tastes like it normally does. Chocolate is one of the worst things that triggers the reaction. That reaction, thankfully, is also not bad now, but it will also last longer as my treatments go on, and on, and on...

As I have mentioned before, I lost count of how many treatments I have had, but if I have not reached 50 of them yet, it's close. They ought to give me a 100 dollar gift card to Best Buy or something, right?

Originally Posted by Dagnabit (Post 12388448)

They ought to give you a endless supply of Boulevard beer for putting up with this shit!

Originally Posted by Lonewolf Ed (Post 12388449)

I am not a big fan of the Boulevard beers. Something in the yeast strain they use has an aftertaste I don't really like. Now, the KC Bier Company Dunkel would work! Carlsberg doesn't export their Jacobsen Brown, so the local dunkel is what I'd choose.

Originally Posted by Dagnabit (Post 12388450)

When did this company form, and do they distribute?

Originally Posted by Lonewolf Ed (Post 12388434)

It may not seem like much to those who are not in my shoes, but I am actually joyful that I am going to be able to have a big COLD glass of orange juice today with my breakfast. The oxiliplatin has not given me lasting cold sensitivity yet, but it is cumulative, so after a few more treatments, it may stay with me constantly. Drinking or eating anything cold when I have the sensitivity is very unpleasant. Think of a mouthful of burrs or tiny cacti in your mouth and throat. Touching anything cold, such as the glass that I poured my juice into, drains the heat from my fingers and makes it feel like I've gotten frostbite. I have to run hot water over my hands because waiting on my blood flow to warm me up again takes too long.

Before cancer, I certainly did enjoy my cold orange juice, but it wasn't something I thought about, being able to drink it that way. Now, I don't take it for granted. When it gets so I can no longer have it, then I'll go back to room temperature cranberry juice, which I also prefer cold, but it is a bit better than tolerable when it is not cold. Warm orange juice, though... forget it!

Now, if I *ever* get off the sodding xarelto and can have grapefruit juice again, that first big cold glass might just make me JIMP.

Originally Posted by patteeu (Post 12388490)

I wonder what effect, if any, miracle fruit tablets would have. Have you ever tried them?

Originally Posted by Lonewolf Ed (Post 12388453)

http://kcbier.com/

I have had the dunkel at the two Austin's Bar and Grills in Olathe. They have a German restaurant in KC, MO, but the menu looks like mostly bar snacks. I am not sure how long they have been around, but Austin's started carrying the dunkel a year or two ago. I have also had it in Barley's Brewhaus in Overland Park.

Originally Posted by Lonewolf Ed (Post 12393883)

No chemo for me today. My blood draw showed my white cells and neutrophils are very low, so my immune system is weak and I can't handle chemo now. I go back on September 7th. My class reunion is the 9th and 10th, so if I am able to go, no beer for me. Oh, well.

Originally Posted by Lonewolf Ed (Post 12393883)

No chemo for me today. My blood draw showed my white cells and neutrophils are very low, so my immune system is weak and I can't handle chemo now. I go back on September 7th. My class reunion is the 9th and 10th, so if I am able to go, no beer for me. Oh, well.

Originally Posted by BigRedChief (Post 12393919)

your going to be back drinking beer whenever you want soon.:thumb: