Praying every day for you. Stay strong. Stay in the Faith.

I came so close to hurling those anti-nausea meds back up the way they came. Mercy, they are foul! My gut felt like it swelled from each side. I quickly popped two white tic tacs, started to sweat, burped and kept them down. Can't they just add some cherry or orange flavor to the damned things?

Some good news today, for a change... My LDH was very high when I got back from my trip, at 463. Now it is 307, after just one treatment, so my body must be working to fight the cancer as well. That suits me fine. I've been fighting this stuff for almost two years now and I am about tired of it. Get lost, Cancer, I have other things to do now! It's time to move on and for you to get out of me and go back to hell where you came from.

My nurse practitioner doesn't want me to lose any more weight. I am down to 210 from 220, and I really don't want to be over 205 so that my pants and shorts button up without threatening to send the button flying across the room. I imagine since I am no longer averaging 5 beers a day, I would lose weight. My face has shrunk from the almost perfect sphere it was over there to where I can see cheekbones, so I don't mind that a bit. If do start dropping more weight, I'll go to Minsky's and have a large pepperoni pizza with extra cheese. If that doesn't halt the weight loss, then I will know there are new problems going on.

Keep on truckin Ed

Your virtual brothers and friends are with you Lone. Hang tough..

Lone is a true inspiration

Keep fighting away Ed, I know you will!

:D.... Gaining weight is a lot more fun than losing it any day...

Getting started on anything is going to be the challenge. It used to be a neutral tasting food would not trigger my salivary gland freak out in the back of my jaws. Not so much now. I bit into a pear that was not quite ripe, but not that sour and I had to spit it out. I was groaning and stamping my feet and it felt like someone punched me in the left side of my jaw. I had a cheeseburger earlier for lunch and about fell off the bench at DQ. It's a sudden hard tingling and clenching of the back of the jaws as if I had three or four of the sourest lemons ever in there. I do not taste lemon, just whatever it is that I ate. My mouth just reacts as if there were lemons. The cold sensitivity is in full swing now, too. Even room temperature water ends up feeling like I've swallowed a few burrs.

I recommend reconsidering pot for these appetite and taste issues.

My appetite is fine; it's just the first few bites are torture.

Man. Hang tough bud.

Ed, your description of every day chores intermingled with introspection of your own mortality has touched me deeply. I wish I had better words to express how much I continue to appreciate your honesty and bravery as you face this struggle. Carry on!

What an inspiration you are !

Bestdamnfriendthatanyonecouldhave_Ed

Ed I've been following your battle and pulling and praying for you. I've been where you are, diagnosed with Hodgkins in HS, battled it into remission and went through it all again in college and despite what the doctors said beat it back again. After what was supposed to kill me 30 years ago, I married, raised a family and ran a successful business. I've had a few tense moments along the way, cancer of the thyroid a couple of years ago due to treatments I received when younger but I'm still here and feel blessed everyday. You show amazing courage by meeting this head on and still talking about it on here giving progress reports etc. I'm glad you took your trip, there will be more! If you ever need anything PM me and thank you for being an inspiration. God Bless You.